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trofinetide

Generic: TROFINETIDE·Brand: DAYBUE, DAYBUE STIX, Daybue

trofinetide: developed by 1 company · 4 clinical trials tracked · 2 FDA decisions.

trofinetide evidence translation

What we can confirm

2 FDA records · 4 tracked trials

What it means

Source-backed records connect trofinetide to ACAD; that link alone does not prove the drug works.

What to watch

Watch active trials and any change in FDA or trial status.
BioSniper AIPage evidence connected

Prepared research question

How could trofinetide → ACAD affect its developer, and what evidence supports the link?

Run cited research

Traceable citations · Unknowns marked

See linked entities and source evidence1 indications · 0 study sponsors

Related indications

Study sponsors

No additional listed-company sponsor is linked.

Development Pipeline (1)
Clinical Trials (4)

An Open-Label Study of Trofinetide for the Treatment of Girls Two to Five Years of Age Who Have Rett Syndrome

NCT04988867·Phase 3·ACAD
Terminated

Primary endpoint: Safety and Tolerability of Treatment With Oral Trofinetide

Interventionalopen15 targetStarted 2021-09Completion 2023-057 sites · United StatesACADIA Pharmaceuticals Inc.

An Open-Label Extension Study of Continuing Treatment With Trofinetide for Rett Syndrome

NCT04776746·Phase 3·ACAD
Terminated

Primary endpoint: Percentage of Patients With Treatment-emergent Adverse Events (TEAEs), With Serious Adverse Events (SAEs), and With Withdrawals Due to AEs

Interventionalopen77 targetStarted 2020-11Completion 2023-0621 sites · United StatesACADIA Pharmaceuticals Inc.

A 40-Week, Open-label Extension Study of Trofinetide for the Treatment of Girls and Women With Rett Syndrome

NCT04279314·Phase 3·ACAD
Completed

Primary endpoint: Percentage of Subjects With Treatment-emergent Adverse Events (TEAEs), Percentage of Subjects With Serious Adverse Events (SAEs), and Percentage of Subjects With Withdrawals Due to AEs

Interventionalopen154 enrolledStarted 2020-01Completion 2022-0821 sites · United StatesACADIA Pharmaceuticals Inc.

A Randomized, Double-Blind, Placebo-Controlled, Parallel-Group Study of Trofinetide for the Treatment of Girls and Women With Rett Syndrome

NCT04181723·Phase 3·ACAD
Completed

Primary endpoint: Rett Syndrome Behaviour Questionnaire (RSBQ) Total Score - Change From Baseline to Week 12

InterventionalRandomizedquadruple187 enrolledStarted 2019-11Completion 2021-1021 sites · United StatesACADIA Pharmaceuticals Inc.
FDA Decisions2 records
Approval1 INDICATIONS AND USAGE DAYBUE and DAYBUE STIX are indicated for the treatment of Rett syndrome in adults and pediatric patients 2 years of age and older. DAYBUE and DAYBUE STIX are indicated for the treatment of Rett syndrome in adults and pediatric patients 2 years of age and older. ( 1 )(ACAD)FDA ↗
NDA219884Type 3 - New Dosage FormOrphan DrugStandardOralSolution
Approval1 INDICATIONS AND USAGE DAYBUE and DAYBUE STIX are indicated for the treatment of Rett syndrome in adults and pediatric patients 2 years of age and older. DAYBUE and DAYBUE STIX are indicated for the treatment of Rett syndrome in adults and pediatric patients 2 years of age and older. ( 1 )(ACAD)FDA ↗
NDA217026Type 1 - New Molecular EntityOrphan DrugPriorityOralSolution

Frequently asked questions

Who is developing trofinetide?

trofinetide is being developed by ACADIA PHARMACEUTICALS INC.

How many clinical trials involve trofinetide?

BioSniper tracks 4 clinical trials involving trofinetide.

What is trofinetide's latest FDA decision?

The most recent tracked FDA decision for trofinetide is Approval for 1 INDICATIONS AND USAGE DAYBUE and DAYBUE STIX are indicated for the treatment of Rett syndrome in adults and pediatric patients 2 years of age and older. DAYBUE and DAYBUE STIX are indicated for the treatment of Rett syndrome in adults and pediatric patients 2 years of age and older. ( 1 ), dated December 11, 2025.